Welcome ! to the MHE Research Foundation website
The MHE Research Foundation is a nonprofit 501(c)(3) organization dedicated to the support of,
Researchers, Physicians and Families,
Dealing with (MHE) Multiple Hereditary Exostoses Syndrome/(MO) Multiple Osteochondroma Syndrome
a Rare Genetic Bone Disease.
The MHE Research Foundations five point mission is to REACH, advance & support the following.
|RESEARCH, to assist and support researchers in order to one day discover a treatment/cure for MHE/MO/HME.
Our foundation works hand in hand with researchers from around the world in this mission.
EDUCATION, to provide vital clinical informational guides benefiting both families and physicians.
ADVOCACY, bring awareness about this rare neglected bone disease throughout the world.
CLINICAL, to help provide resources to families enabling them to locate the medical care they require.
HOPE, the research being conducted on MHE/MO/HME & the informational resources will bring a better quality of
life to the families affected by this syndrome around the world.
Scroll down to read highlights, use the tool bar section tabs above to view complete website information.
|General donations to our foundation can be made Monthly,Quarterly,Annually as well as one time donation
|Make A Donation Via Check
|The AWARENESS ribbon color for
MHE/ MO /HME is WHITE.
Please show your support for our
cause by wearing a white ribbon this
way when people ask! You can let
them know what our ribbon means.
MHE FAMILY SUPPORT SECTION
VIEW CLICK HERE
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Email the webmaster: firstname.lastname@example.org
Materials on this website are protected by copyright
Copyright © 2014 The MHE Research Foundation
Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine.
In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
This web page was updated last on 3/16/14 12:0O pm Eastern time
|This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation.
All online submission forms use (SSL AES 256 bit encryption (High); RSA 1024 bit exchange) Protocol with Privacy protection.
Our goal is to make this website as safe and user friendly as possible.
|The MHE Research Foundation is a participating member organization of the
United States Bone and Joint Decade/Initiative, (USBJD/I) , USBJD/I Rare Bone Disease Patient Network , NBHA National Bone Health Alliance
|What is Multiple Hereditary Exostoses Syndrome?
Multiple Hereditary Exostoses (MHE) also often referred to as
Hereditary Multiple Exostoses (HME)
Multiple Osteochondromas (MO) is the preferred term used by the
World Health Organization "WHO".
|RESEARCH & THE SANFORD-BURNHAM
|Journal "The Scientist" Bones to Brains - Autism- Relevant Behavioral Phenotype
Click here to read this article
PRESS RELEASE RESEARCH & THE SANFORD BURNHAM
|The MHE Research Foundation
Partnering in Advocacy and Education with the Musculoskeletal Tumor Society (MSTS)
|Dr. Richard Lackman
2011 President of MSTS and long time supporter. Dr. Lackman
is Porfessor and Director, Sarcoma Center of Excellence at the
Abramson Cancer Center of the University of Pennsylvania
|Dr. Lor Randal 2011 President of CTOS with Sarah Ziegler and
Dr. Kevin Jones.Both are members of the
Foundations advisory board.
|Dr. Kevin B. Jones has authored the book
"What Doctors Cannot Tell You: Clarity, Confidence and Uncertainty in Medicine" published June of 2012
Dr. Jones serves on the Scientific and Medical Advisory Board of our Foundation.
We would like to thank Dr. Jones for all of his efforts on behalf of patients.
|MHE Research was presented by Maurizio Pacifici, Ph.D., Director of Research, Division of Orthopaedic
Surgery, The Children’s Hospital of Philadelphia and Sarah Ziegler in panel discussion.
To view all video presentations from the 2013 Click Here
To view the 2012 Symposium with Dr. Yu Yamaguchi's video presentation and all the others during this
symposium Click Here
|Opening remarks from Sarah Ziegler Foundation Vice
President during the 2012 MHE Research Conference
|Opening remarks from Craig Eaton Foundation President
during the 2012 MHE Research Conference
|The MHE Research Foundation
Marjorie (Max) Reynolds Patient/Family Care Coordinator.
|Our Foundation would like to thank European Peadiatric Orthopaedic Society(EPOS) and participants
especially Luca Sangiorgi, MD. Ph.D who member of our Scientific and Medical Board.
This meeting attracts Pediatric Orthopaedic surgeons from over 32 countries.
Our Foundations Vice President and National Director of Research Sarah Ziegler held an educational
display at the (EPOS) annual congress April 17-20, 2013 in Athens Greece. During this conference.
Dr. Dror Paley presented "Treatment of the Hip in Multiple Hereditary Exostoses (MHE) by Safe Surgical
|The 10 Annual International Pediatric Orthopaedic Symposium (IPOS) was held December 4-7 2013 presented by
POSNA and AAOS and Dr. Dror Paley presented Treating MHE of the Proximal Femur and Dr. Pater Waters presented
MHE and the forearm
The 11 Annual International Pediatric Orthopaedic Symposium (IPOS) will be held Dec 3 - Dec 6, 2014
Our Foundations Vice President and National Director of Research Sarah Ziegler always will attend and have an educational display
The MHE Research Foundation would like to express its gratitude to POSNA, AAOS, the leadership of these Societies
on behalf our foundation for their support in the improvement of the clinical care MHE patients receive through all of
the continuing educational efforts. As
|Mechanistic and Therapeutic Insights into Skeletal Biology
Learned from the Study of Rare Bone Diseases
Thursday, September 11,2014 One day prior to the
American Society for Bone and Mineral Research
(ASBMR 2014 Annual Meeting)
George R. Brown Convention Center, 1001 Avenida De Las Americas,
SUNDAY, SEPTEMBER 22, 2013
El Caribe Country Club
2013 MHE Research Foundation
"The Humanitarian Scientific Achievement Award"
Dror Paley, MD, FRCSC
Director Paley Advanced Limb Lengthening Institute
Click Here to read more
|On September 18, 2013
The MHE Research Foundation (Sarah Ziegler, Dr, Yamaguchi, Dr. Pacifici and the Rare Bone Disease Advocacy
Alliance member organizations hosted the first-ever Rare Bone Disease Advocacy Day on Capitol Hill in Washington,
DC. On this Advocacy Day, advocates from across the nation meet with their elected officials in Congress to explain
the real-life impact of rare bone disorders and the need to accelerate the federal government’s commitment to
supporting research. Click here to read agenda
|The 5th International MHE Research Conference will be held Dec 11-13, 2015
Besides the Scientific sessions, Sunday Dec 13, MHE Patient/Family sessions will be held
as well as an MHE Clinic. Conference is being organized by Jeff Esko, Ph.D, Dror Paley,
MD, FRCSC and the MHE Research Foundation. Please Click here for more information
Also located on the conference webpage is Feb 2014 last conference report
Published in the Journal of Connective Tissue Research
|Our Foundations Vice President and National Director of Research Sarah Ziegler as alway attended and
had an educational exhibit display at the Pediatric Orthopaedic Society of North America (POSNA)
annual conference held April 30, 2014 – May 3, 2014 in Hollywood, California
|Dr. George H. Thompson, POSNA 2003 President,
POSNA 2011 President, Dr. James Roach,
POSNA 2010 President, John P. Dormans and Sarah Ziegler
|Dr. Charles T. Price,
Distinguished Achievement Award
and POSNA 2005 President
|Dr. James Roach POSNA 2011 President,
|Dr. Leon Root Dr. John P. Dormans Dr. Richard Davidson Dr. James McCarthy LLRS 2012 Dr. James Roach, Dr. Harold JP van Bosse
|Dr. Benjamin A. Alman