Learn all you can about your physical condition. Understand that there may be no current cure and accept | | that you will need to deal with the fact of pain in your life.
 | | Get Involved
| Take an active role in your own recovery. Follow your doctor's advice and ask what you can do to move from |
| | a passive role into one of partnership in your own health care.
 | | Learn to Set Priorities
| Look beyond your pain to the things that are important in your life. List the things that you would like to do. |
| | Setting priorities can help you find a starting point to lead you back into a more active life.
 | | Set Realistic Goals
| We all walk before we run. Set goals that are within your power to accomplish or break a larger goal down |
| | into manageable steps. And take time to enjoy your successes.
 | | Know Your Basic Rights
| We all have basic rights. Among these are the right to be treated with respect, to say no without guilt, to do |
| | less than humanly possible, to make mistakes, and to not need to justify your decisions, with words or pain.
 | | Recognize Emotions
| Our bodies and minds are one. Emotions directly affect physical well being. By acknowledging and dealing |
| | with your feelings, you can reduce stress and decrease the pain you feel.
 | | Learn to Relax
| Pain increases in times of stress. Relaxation exercises are one way of reclaiming control of your body. Deep |
| | breathing, visualization, and other relaxation techniques can help you to better manage the pain you live with.
 | | Exercise
| Most people with chronic pain fear exercise. But unused muscles feel more pain than toned flexible ones. |
| | With your doctor, identify a modest exercise program that you can do safely. As you build strength, your pain can decrease. You'll feel better about yourself, too.
 | | See the Total Picture
| As you learn to set priorities, reach goals, assert your basic rights, deal with your feelings, relax, and regain |
| | control of your body, you will see that pain does not need to be the center of your life.
You can choose to focus on your abilities, not your disabilities. You will grow stronger in your belief that you can live a normal life in spite of chronic pain.
 | | Choose a Multidisciplinary Pain Program
| To regain control of your life, it is important to learn how to cope with chronic pain. Although your pain may |
| | never go away, it is possible to reduce pain levels and, more importantly, to improve the quality of your life.
To do so, you may need a multidisciplinary approach to chronic pain. While many people with pain have tried every available medical intervention without great success, sometimes these therapies are most effective when performed together in a controlled setting.
A multidisciplinary pain program can provide you with the necessary skills, medical intervention, and direction to effectively cope with chronic pain. Here is advice on how to locate a pain management program in your area, what to look for in a well-defined pain program, and what other issues to consider. Consumer Guidelines to Selecting a Pain Unit
 | | Make sure you locate a legitimate program
|  | | Hospitals and rehabilitation centers are more likely to offer comprehensive treatment than are "stand | | | alone" programs. Facilities that offer pain management should include several specific components, listed below
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 | | Choose a good program that is convenient for you and your family:
|  | | Most pain management programs are part of a hospital or rehabilitation center. The program should | | | be housed in a separate unit designed for pain management.
|  | | Choosing a program close to your home will enable you to commute to the program each day.
|  | | Learn something about the people who run the program:
| Try to meet several of the staff members to get a sense of the people you will be dealing with while on the |
| | unit. The program should have a complete medical staff trained in pain management techniques including:
 | | Physician (a neurologist, psychiatrist, physiatrist, or anesthesiologist with expertise in pain | | | management)
|  | | Registered nurse
|  | | Psychiatrist or psychologist
|  | | Physical therapist
|  | | Occupational therapist
|  | | Biofeedback therapist
|  | | Family counselor
|  | | Vocational counselor
|  | | Massage Therapy
|  | | Other personnel trained in pain management intervention
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Make sure the program includes most of the following features:
 | | Biofeedback training
|  | | Group therapy
|  | | Counseling
|  | | Occupational therapy
|  | | Family counseling
|  | | Assertiveness training
|  | | TENS units
|  | | Regional anesthesia (nerve blocks)
|  | | Physical therapy (exercise and body mechanics training, not massage, whirlpool, etc.)
|  | | Relaxation training and stress management
|  | | Educational program covering medications and other aspects of pain and its management
|  | | Aftercare (follow-up support)
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Be sure your family can be involved in your care:
 | | Family members should be required to be involved in your treatment.
|  | | The program should provide special educational sessions for family members.
|  | | Joint counseling for you and your family should also be available.
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Also consider these additional factors:
 | | What services will your medical insurance reimburse and what will you be expected to cover?
|  | | Will you need a PCP referral?
|  | | What is the unit's physical set-up (is it in a patient care area or in an area by itself)?
|  | | What is the program's length?
|  | | Is the program inpatient or outpatient
|  | | If you choose an out-of-town unit, can your family be involved in your care?
|  | | Do you understand what will be required of you (responsibility to take care of personal needs, etc.)?
|  | | Does the unit provide any type of job retraining?
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Make sure that, before accepting you, the unit reviews your medical records and gives you a complete |
| | physical evaluation to be sure you can participate in the program. Obtain copies of your recent medical records to prevent duplicate testing. Try to talk with both present and past program participants to get their feedback about their stay on the unit. Pain programs are difficult, but pain management can make a significant difference in your life. You must realize, however, that much of what you gain from comprehensive pain management will be up to you.
This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation.
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Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care.The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
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The MHE Research Foundation is proud to be working with the EuroBoNeT consortium, a European Commission granted Network of Excellence for studying the pathology and genetics of bone tumors.
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