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Wings of HOPE as we REACH of the
Cure to Multiple Hereditary Exostoses
Website user information key:
This website is loads faster using Fire Fox web browser.
People using Internet Explorer web browser: To use the full drop down tool bar you will need
to move your mouse over the tool bar and scroll or use the small scroll located on the right
hand of this webpage.  
The video presentations located on this website may take time to load due to the length, the
flash media format used, also depending on your Internet connection and web browser.
Internet explorer is very slow to load.  Our foundation has found when using Fox Fire web
browser down load link or Netscape web browser down load link, this presentation loads MUCH
faster. Right click on the presentation screen for controls.
A few web-pages contained on this website may take a minute to load due to the size and
multiple files contained within them. All links & tool bar are active and checked weekly.
If you happen to click a link that is not working please notify using this comment form link or
email the master at webmaster@mheresearchfoundation.org Thank you.
If you wish, you can download the PDF (adobe) files contained on this website. When you open
the PDF files on your computer, go to VIEW and click on READ OUT LOUD, sit back and listen
to them read to you.
There are tables located in the Orthopaedic, Genetic and Pain sections with links to guide
information, these are the same links located in the website tool bar. This was done to insure
easy use of our website.  Once you have a chance to review the information located on this
website, return visitors may simply want to check the announcement page  for a complete
listing of all new links and information that has been added to our website
Our goal is to make this website as user friendly as possible.

Privacy policy:

We are committed to the protection of the privacy of our website users and visitors. Our website systems do not automatically capture any of your personal information unless you specifically
provide this information to us. All forms of communication are considered confidential (Online
communication forms, email, on line submission, hard copy correspondence, phone conversations)
and will not be released to anyone without your written consent.
If you register with The MHE National Research Registry, once you agree with the teams as
stated within this registry including all forms of communication associated with this registry,
the National Director of Research will have access to your contact and personal information,  
Only Principle Researchers maybe given your contact information, as required within a research
project and will be stated.  All Principle Researchers have signed certificates of cooperation
with MHERF as has MHERF's National Director of Research.

However, in order to reply to any MHERF inquiries and requests, you agree that:
1.        You must provide us with certain contact information such as name, address, telephone
number and e-mail address.  

2.        When you provide MHERF with your contact information, this information will be placed into
our secure database. Only the 5 Board of Directors of MHERF may access your contact information.  
All online submission forms use (SSL 3.0, RC4 with 128 bit encryption (High); RSA with 1024 bit
exchange) Internet Security.

3.        We may use this information to reply to your inquiries and used for the sole purpose of
keeping you informed on the activities of the MHE Research Foundation. When contacting you via
email, any email address associated with the MHE Research Foundation other than a Researcher or
Medical Professional will always end with @mheresearchfoundation.org or @MHE-HME.org. If you
receive email that does not end this way, please disregard as it was not sent by this foundation and
is not connected with this foundation in any way.

4.        Please be mindful to check with the Privacy Policies of any other organizations that you
maybe in contact with as these organizations Privacy Policies may differ from our foundation. You
may want to check safeguards & website security of these organizations (SSL 3.0, RC4 with 128 bit
encryption (High); RSA with 1024 bit exchange) such as MHERF has insured to protect you personal
information.

5.       All hard copy (paper) confidential information, is located in a locked fire retardant safe.

If you have any questions about the privacy policies of this foundation's please email or call the toll
free phone number and we will be happy to answer any questions you may have concerning this
foundation.
Toll Free Phone number: 1-877- 486- 1758
Email Board of Directors

Terms of use:

Your use of this website and any materials contained therein constitutes your acceptance of our
terms of use.

1.        Any and all materials available at this website may be reproduced or distributed for personal,
non-commercial, or educational use ONLY.

2.        You may not download, reproduce, retransmit, republish and/or distribute copies of the
materials available at this web site, in whole or in part, in any manner, by any means whatsoever,
without our prior written permission with the following exception: You may make one single copy of
the materials available at this website, solely for your personal, non-commercial, or educational use,
and only if you exercise due diligence in ensuring the accuracy of the materials reproduced, you do
not modify the materials in any way during reproduction, and you preserve any copyright or other
notices contained in or associated with them. All other rights reserved.

3.        You may not distribute the reproduced materials to others, whether or not in electronic
form, whether or not in whole or in part, whether or not for a charge or other consideration, without
our prior written permission.

4.        You may not modify the reproduced materials, in whole or in part, in any manner, without
our prior written permission.

5.        You may not use the reproduced materials in any advertising or publicity, or to otherwise
indicate the publisher's sponsorship of, or affiliation with MHERF.

6.        Commercial/For-Profit Businesses are expressly prohibited from reproducing or distributing
any and all materials available at this web site.
To obtain permission to reproduce or distribute materials available at this website, please email
Board of Directors

Notice of trademarks:

The names, trademarks, service marks, logos, graphics, photographs, renderings, graphics or other
visuals on this web site are subject to copyrights.

Linking to non-profit guides:

We encourage and appreciate links from your web site to this website.
You are welcome to link to www.mheresearchfoundation.org  without permission. As a courtesy, if
you link to this web site, or include this website in an index, please email webmaster
MHERF Privacy Policy & Terms of use & User key information
This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation.
Disclaimer:   While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice
of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.  
Written consent must be obtained to attach web pages or the files attached to this website. Please email webmaster.
This web page was updated last on 2/20/08,  4:00 pm Eastern time
The MHE Research Foundation, we comply with the HONcode standard for health trust worthy information:
By the Health On the Net Foundation. Click here to verify.# HON Conduct 282463 and is linked on the NIH
National Library of Medicine, Directory of Health Organizations (SIS) website, as well as the link for Patient
Information on The Diseases Database a cross-referenced index of human disease, and the Intute: health & life
sciences a free online service  providing access to the very best Web resources for education and research
located in the  UK
The MHE Research Foundation is proud to be working with the EuroBoNeT consortium, a European Commission
granted Network of Excellence for studying the pathology and genetics of bone tumors.

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