Jacqueline Hecht, PH.D.
Hereditary Multiple Exostosis and Pain
Abstract 2005 MHE Conference
Jacqueline Hecht1 and Sandra Darilek2
1Department of Pediatrics, University of Texas Houston Medical Center
2Genetic Counselor Baylor College of Medicine
This study was undertaken to characterize pain in individuals with hereditary multiple exostosis
(HME). Two hundred ninety-three patients with HME completed a questionnaire designed to assess
pain as well as its impact on their life. Eighty-four percent of participants reported having pain,
indicating that pain is a real problem in HME. Of those with pain, 55.1% had generalized pain.
Two factors were found to be associated with pain outcome: HME-related complications and surgery.
Individuals who had HME-related complications were five times more likely to have pain, while those
who had surgery were 3.8 times more likely to have pain.
No differences were found between males and females with respect to pain, surgery, or HME-related
complications.
The results of this study indicate that the number of individuals with HME who have pain has been
underestimated and that pain is a problem that must be addressed when caring for individuals with
HME.
Abstract 2005 MHE Conference
Jacqueline Hecht1 and Sandra Darilek2
1Department of Pediatrics, University of Texas Houston Medical Center
2Genetic Counselor Baylor College of Medicine
This study was undertaken to characterize pain in individuals with hereditary multiple exostosis
(HME). Two hundred ninety-three patients with HME completed a questionnaire designed to assess
pain as well as its impact on their life. Eighty-four percent of participants reported having pain,
indicating that pain is a real problem in HME. Of those with pain, 55.1% had generalized pain.
Two factors were found to be associated with pain outcome: HME-related complications and surgery.
Individuals who had HME-related complications were five times more likely to have pain, while those
who had surgery were 3.8 times more likely to have pain.
No differences were found between males and females with respect to pain, surgery, or HME-related
complications.
The results of this study indicate that the number of individuals with HME who have pain has been
underestimated and that pain is a problem that must be addressed when caring for individuals with
HME.
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Research authored by Dr. Hecht
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List of Publications via PubMed
(NIH National Library of Medicine)
List of Publications via PubMed
(NIH National Library of Medicine)
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National Library of Medicine, Directory of Health Organizations (SIS) website, as well as the link for Patient
Information on The Diseases Database a cross-referenced index of human disease, and the Intute: health & life
sciences a free online service providing access to the very best Web resources for education and research
located in the UK
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