Become an Advocate for the MHE Research Foundation
While you may think that you are just one person, and your voice is too small to be heard, every
effort makes a difference! In fact, it is essential that you write to your elected officials. That's how
grass-roots lobbying has its largest impact. The greater number of people who write and call their
representatives, the more influence we have in order to make a difference in the lives of those with
Multiple Hereditary Exostoses
Remember: MHE is serious, the research being conducted on MHE will benefit MHE patients
world-wide and also could have great implications for millions of patients who suffer from more
common bone ailments, such as arthritis, osteoporosis, other therapeutic applications including
inflammation, cancer, neuron degeneration and cardiovascular disorders.
We matter!
PLEASE HELP the children and adults living in with this disease.
They have the same dreams, aspirations and goals as other people but unfortunately face each day
with greater struggle.
We need your support!
While you may think that you are just one person, and your voice is too small to be heard, every
effort makes a difference! In fact, it is essential that you write to your elected officials. That's how
grass-roots lobbying has its largest impact. The greater number of people who write and call their
representatives, the more influence we have in order to make a difference in the lives of those with
Multiple Hereditary Exostoses
Remember: MHE is serious, the research being conducted on MHE will benefit MHE patients
world-wide and also could have great implications for millions of patients who suffer from more
common bone ailments, such as arthritis, osteoporosis, other therapeutic applications including
inflammation, cancer, neuron degeneration and cardiovascular disorders.
We matter!
PLEASE HELP the children and adults living in with this disease.
They have the same dreams, aspirations and goals as other people but unfortunately face each day
with greater struggle.
We need your support!
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What is MHE Advocacy?
Advocacy involves individuals who are committed to influence positive change in their lives,
communities and elected governments by making their personal stories and opinions known. They
seek these changes by getting involved and taking action in order to make a difference in the lives of
those afflicted with MHE and their families. Getting involved in advocating for the MHE Research
Foundation may mean taking any of the following actions in contacting your local, state or federal
government representatives:
Making telephone calls
Writing letters
Sending email's
Visiting your elected representatives in your home state
As an advocate, you represent all patients with MHE. Because you are a constituent and a registered
voter in your legislator's home district and state, your opinions are important to them!
So if you haven't yet contacted your United States or State representatives, please do so, using the
resources on this page for help.
communities and elected governments by making their personal stories and opinions known. They
seek these changes by getting involved and taking action in order to make a difference in the lives of
those afflicted with MHE and their families. Getting involved in advocating for the MHE Research
Foundation may mean taking any of the following actions in contacting your local, state or federal
government representatives:
Making telephone calls
Writing letters
Sending email's
Visiting your elected representatives in your home state
As an advocate, you represent all patients with MHE. Because you are a constituent and a registered
voter in your legislator's home district and state, your opinions are important to them!
So if you haven't yet contacted your United States or State representatives, please do so, using the
resources on this page for help.
| Advocacy |
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This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation.
Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice
of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
The information provided here is for educational and informational purposes only. This website does not engage in the practice
of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
Written consent must be obtained to attach web pages or the files attached to this website. Please email webmaster.
This web page was updated last on 2/20/08, 4:00 pm Eastern time
| Email the webmaster: webmaster@mheresearchfoundation.org Materials on this website are protected by copyright Copyright © 2008 The MHE Research Foundation |
The MHE Research Foundation, we comply with the HONcode standard for health trust worthy information:
By the Health On the Net Foundation. Click here to verify.# HON Conduct 282463 and is linked on the NIH
National Library of Medicine, Directory of Health Organizations (SIS) website, as well as the link for Patient
Information on The Diseases Database a cross-referenced index of human disease, and the Intute: health & life
sciences a free online service providing access to the very best Web resources for education and research
located in the UK
By the Health On the Net Foundation. Click here to verify.# HON Conduct 282463 and is linked on the NIH
National Library of Medicine, Directory of Health Organizations (SIS) website, as well as the link for Patient
Information on The Diseases Database a cross-referenced index of human disease, and the Intute: health & life
sciences a free online service providing access to the very best Web resources for education and research
located in the UK
The MHE Research Foundation is proud to be working with the EuroBoNeT consortium, a European Commission
granted Network of Excellence for studying the pathology and genetics of bone tumors.
granted Network of Excellence for studying the pathology and genetics of bone tumors.
