Become an Advocate for the MHE Research Foundation

While you may think that you are just one person, and your voice is too small to be heard, every effort makes a difference! In
fact, it is essential that you write to your elected officials. That's how grass-roots lobbying has its largest impact. The greater
number of people who write and call their representatives, the more influence we have in order to make a difference in the lives
of those with Multiple Hereditary Exostoses

Remember: MHE is serious, the research being conducted on MHE will benefit MHE patients world-wide and also could have great
implications for millions of patients who suffer from more common bone ailments, such as arthritis, osteoporosis, other
therapeutic applications including  inflammation, cancer, neuron degeneration and cardiovascular disorders.

We matter!

PLEASE HELP the children and adults living in with this disease.
They have the same dreams, aspirations and goals as other people but unfortunately face each day with greater struggle.

We need your support!
What is MHE Advocacy?
Advocacy involves individuals who are committed to influence positive change in their lives, communities and elected
governments by making their personal stories and opinions known. They seek these changes by getting involved and taking
action in order to make a difference in the lives of those afflicted with MHE and their families. Getting involved in advocating for
the MHE Research Foundation may mean taking any of the following actions in contacting your local, state or federal government
representatives:

Making telephone calls

Writing letters

Sending email's

Visiting your elected representatives  in your home state
As an advocate, you represent all patients with MHE. Because you are a constituent and a registered voter in your legislator's
home district and state, your opinions are important to them!

So if you haven't yet contacted your United States or State representatives, please do so, using the resources on this page for
help.
Advocacy
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here to verify.# HON Conduct 282463  and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on
The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences  a free online service  providing access to the very best Web resources for education and research located in the  UK
The MHE Research Foundation is proud to be working with the EuroBoNeT consortium, a European Commission granted Network of Excellence for
studying the pathology and genetics of bone tumors.
This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation.

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Our goal is to make this website as safe and user friendly as possible.
The MHE Research Foundation is a participating member organization of the
United States Bone and Joint Decade,  (USBJD) & the  USBJD Rare Bone Disease Patient Network
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Email the webmaster:
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Copyright © 2009 The MHE Research Foundation

Disclaimer:   While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine.
In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
 

This web page was updated last on 12/16/09, 4:0O pm Eastern time
The MHE Research Foundation is proud to be an affiliate of the Society For Glycobiology
The MHE Research Foundationis proud to be a partnering society with ASMB & CTOS