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Wings of HOPE as we REACH of the Cure to Multiple Hereditary Exostoses
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Multiple Hereditary Exostoses can be a very painful disease, this was clearly
demonstrated during the Hereditary Multiple Exostoses and Pain Study
Full Text link to the published paper
What is Chronic Pain?
Chronic pain persists. Pain signals keep firing in the nervous system for months, even years.
Neuropathic pain: is pain that is caused by damage to nerve tissue. It is often felt as a
burning or stabbing pain.
Nociceptive pain: means pain caused by an injury or disease outside the nervous system.
It is often an on-going dull ache or pressure, rather than the sharper, trauma-like pain
The origin of some pain is neuropathic, while other pain is nociceptive. This is important to
know because different treatments will work better for each type of pain.
What is Acute Pain?
Acute pain is a normal sensation triggered in the nervous system to alert you to possible
injury and the need to take care of yourself.
Example: Acute pain is the pain that one experiences after surgery.
Pain Medicine:
The specialty of Pain Medicine is concerned with the prevention, evaluation, diagnosis,
treatment, and rehabilitation of painful disorders. The diagnosis of painful syndromes relies
on interpretation of historical data; review of previous laboratory, imaging, and
electrodiagnostic studies; behavioral, social, occupational and avocational assessment;
interview and examination by the pain specialist; and may require specialized diagnostic
procedures.
The special needs of the pediatric adult and geriatric populations are considered when
formulating a comprehensive treatment plan for these patients.
The pain physician serves as a consultant to other physicians but is often the principal treating
physician and may provide care at various levels, such as direct treatment, prescribing medication,
prescribing rehabilitative services, performing pain relieving procedures, counseling of patients and
families, direction of a multidisciplinary team, coordination of care with other healthcare providers and
consultative services to public and private agencies pursuant to optimal healthcare delivery to the
patient suffering from a painful disorder.
The pain physician may work in a variety of settings and is competent to treat the entire range of
painful disorders encountered in delivery of quality health care.
Many people with chronic pain don't seek pain relief, or even tell their doctors
about their pain. Most often, the reasons for keeping pain a secret are based on
fears or myths:
 | | Fear of being labeled as a "bad patient." You won't find relief if you don't talk with your doctor |
| | about the pain you feel.
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 | | Fear that increased pain may mean that the disease has worsened. Regardless of the state of |
| | your disease, the right treatment for pain may improve daily life for you and your family.
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 | | Fear of addiction to drugs. Research has shown that the chance of people with chronic pain |
| | becoming addicted to pain-relieving drugs is extremely small. When taken properly for pain, drugs can relieve pain without addiction. Needing to take medication to control your pain is not addiction.
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 | | Lack of awareness about pain therapy options. Be honest about how your pain feels and how it |
| | affects your life. Ask your doctor about the pain therapy options available to you. Often, if one therapy isn't effectively controlling your pain, another therapy can.
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 | | Fear of being perceived as "weak." Some believe that living stoically with pain is a sign of |
| | strength, while seeking help often is considered negative or weak. This perception prevents them seeking the best treatment with available therapies.
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Don't let fears and misconceptions keep you from talking to your doctor and
other members of your health care team about getting adequate pain relief.
Help and relief are possible, but only if you discuss your symptoms with your
doctor.
Tips for Finding a Pain Physician:
1. How many cases of my type of pain condition have you treated?
2. What are the physicians special qualifications to treat my pain condition?
3. Has the physician participated in any special training about pain management techniques?
4. What is the physicians philosophy of management of my pain condition in terms of medications
and alternative therapies?
5. Is the physician, or is someone in the clinic, available 24 hours a day if I need help?
SIRA: New Understanding of Pain Development and Response to Treatment
Dr. Tony L. Yaksh on new understanding of pain development and its response to treatment
in this Public Lecture Series presentation by Stein Institute for Research on Aging.
Click tab to watch video




This presentation takes time to load due to the length, the flash media format used and depending on your Internet connection and web browser. Internet explorer is very slow to load. Our foundation has found when using Fox Fire web browser down load link, Netscape web browser down load link, or Safari is also available for windows PC web browser down load link, this presentation loads MUCH faster. Right click on the presentation screen for controls to turn off this video.
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What is Pain Video Presentation Ashish C. Sinha, M.D., Ph.D Assistant Professor of Anesthesiology and Critical Care at the Hospital of the University of Pennsylvania Adjunct Investigator, Institute for Translational Medicine and Therapeutics Adjunct Investigator, Institute for Environmental Medicine Assistant Professor Of Otorhinolaryngology & Head and Neck Surgery, University of Pennsylvania School of Medicine
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We advise that if you would like to watch the Treating Chronic Pain video please DO NOT the link
below as their is already a video running on this webpage Please Click Here and this video will
open on a new webpage.
This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation.
Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice
of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
Written consent must be obtained to attach web pages or the files attached to this website. Please email webmaster.
This web page was updated last on 2/20/08, 4:00 pm Eastern time
The MHE Research Foundation is proud to be working with the EuroBoNeT consortium, a European Commission
granted Network of Excellence for studying the pathology and genetics of bone tumors.