INITIATIVE PUT INTO ACTION SETTING THE BENCH MARK FOR RARE DISEASE DAY! The MHE Research Foundations/Sanford-Burnham hosted the inaugural Rare Disease Symposium held on Feb 26th, 2010 a unique format in which patients and their families were given a voice and the scientists were there to listen. Symposium program link / All video presentations from the conference link Sanford~Burnham New Letter article link |
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