U.S. Department of Health & Human Services
CMS Center for Medicare & Medicaid Services
CMS Center for Medicare & Medicaid Services
Ronald McDonald House program began in 1974 based on a simple idea: Provide a "home away
from home" for families of seriously ill children receiving treatment at nearby hospitals. Since that
time, more than 10 million families around the world have benefited from the comfort provided
by a Ronald McDonald House. Click on chapter search
from home" for families of seriously ill children receiving treatment at nearby hospitals. Since that
time, more than 10 million families around the world have benefited from the comfort provided
by a Ronald McDonald House. Click on chapter search
Hospital Hosts was created to provide medical travelers and their loved ones with a solution to
the lodging issue….a nationwide network of comfortable, economical housing options, ranging
from B&Bs to hotels to special facilities for hospital patients and families. And, sometimes, we
can even help you find rooms in private homes, with families who understand exactly what you’
re going through - because, in many cases, they’ve gone through it themselves.
Hospital hospitality houses: Hospital hospitality houses (HHH) provide free or significantly
reduced cost lodging to patients and their families while receiving medical care away from their
home communities. Unlike a hotel, HHHs provide opportunities for those going through similar
stressful situations to come together as a community where they can support one another.
HHHs have shared kitchens, common living areas and private bedrooms just like a home,
creating a warm and comfortable place far from home. HHHs help alleviate the financial burden
often associated with medical crises and have shown to reduce stress on both the patient and
family members
the lodging issue….a nationwide network of comfortable, economical housing options, ranging
from B&Bs to hotels to special facilities for hospital patients and families. And, sometimes, we
can even help you find rooms in private homes, with families who understand exactly what you’
re going through - because, in many cases, they’ve gone through it themselves.
Hospital hospitality houses: Hospital hospitality houses (HHH) provide free or significantly
reduced cost lodging to patients and their families while receiving medical care away from their
home communities. Unlike a hotel, HHHs provide opportunities for those going through similar
stressful situations to come together as a community where they can support one another.
HHHs have shared kitchens, common living areas and private bedrooms just like a home,
creating a warm and comfortable place far from home. HHHs help alleviate the financial burden
often associated with medical crises and have shown to reduce stress on both the patient and
family members
Angel Flight was created by a group of pilots who believe in the benefit of volunteering. We
strive to keep all aspects of the organization volunteer. We are a non-profit charitable
organization of pilots, volunteers, and friends. We will arrange free air transportation for any
legitimate, charitable, medically related need.
The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer
pilots are dedicated to community service. This ACA site will introduce you to us and to all the
groups we list whose volunteers perform public benefit flying for health care, patient transport,
disaster relief, environmental support, and other missions of public service.
strive to keep all aspects of the organization volunteer. We are a non-profit charitable
organization of pilots, volunteers, and friends. We will arrange free air transportation for any
legitimate, charitable, medically related need.
The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer
pilots are dedicated to community service. This ACA site will introduce you to us and to all the
groups we list whose volunteers perform public benefit flying for health care, patient transport,
disaster relief, environmental support, and other missions of public service.
Make A Wish Foundation, grants the wishes of children with life-threatening medical conditions
to enrich the human experience with hope, strength, and joy.
The Make A Wish Foundation has granted wishes to children with MHE / MO / HME
to enrich the human experience with hope, strength, and joy.
The Make A Wish Foundation has granted wishes to children with MHE / MO / HME
| Resource Section Page |
The National Dissemination Center for Children with Disabilities (NICHCY) has provided
information and resources to the nation on disabilities in children and youth for many decades.
IDEA is our nation's special education law. IDEA stands for Individuals with Disabilities Education
Act, their programs, services, activities
information and resources to the nation on disabilities in children and youth for many decades.
IDEA is our nation's special education law. IDEA stands for Individuals with Disabilities Education
Act, their programs, services, activities
U.S. Department of Justice Americans with Disabilities Act, their programs, services, activities
Disabilities Education Act (IDEA) Section 504, their programs, services, activities. Section 504
covers qualified students with disabilities who attend schools receiving Federal financial
assistance. Many children with MHE need an IEP or 504
covers qualified students with disabilities who attend schools receiving Federal financial
assistance. Many children with MHE need an IEP or 504
Department of Education, A Guide to the Individualized Education Program
Disability Benefits SSD Insurance Program is a comprehensive resource that provides quick and
easy access to information about the SSD program.
easy access to information about the SSD program.
Information for writing letter for school needs, MHE/MO/HME Clinical Information form PDF ,
MHE/MO/HME school needs check list PDF
MHE/MO/HME school needs check list PDF
MHE Connection Corner Google email support group, The Kids Zone, Caring Bridge
Supplemental Security Income (SSI) Program is a comprehensive resource that provides quick and
easy access to information about the SSi program.
easy access to information about the SSi program.
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If you are Physician or Genetic Counselor would a second opinion or assistance related to care, email Sarah Ziegler directly or
sign into the physician registry.
At that point the MHE Research Foundation will put the Physician/Genetic Counselor directly in contact with a Physician or
Geneticists that could help sort out the medical issue directly. This assistance is offered to medical professional only.
If you are a patient wanting a second opinion please use the doctor directories located on this website, if after you still need
assistance contact Sarah Ziegler.
sign into the physician registry.
At that point the MHE Research Foundation will put the Physician/Genetic Counselor directly in contact with a Physician or
Geneticists that could help sort out the medical issue directly. This assistance is offered to medical professional only.
If you are a patient wanting a second opinion please use the doctor directories located on this website, if after you still need
assistance contact Sarah Ziegler.
Written consent must be obtained to attach web pages or the files attached to this website, please email the webmaster. Email the webmaster: webmaster@mheresearchfoundation.org Materials on this website are protected by copyright Copyright © 2014 The MHE Research Foundation Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care. The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine. This web page was updated last on 3/16/14, 12:0O pm Eastern time |
The MHE Research Foundation, we comply with the HONcode standard for health trust worthy information: By the Health On the Net Foundation.
Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
| This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation. All online submission forms use (SSL AES 256 bit encryption (High); RSA 1024 bit exchange) Protocol with Privacy protection. Our goal is to make this website as safe and user friendly as possible. |
| The MHE Research Foundation is a participating member organization of the United States Bone and Joint Decade/Initiative, (USBJD/I) & the USBJD/I Rare Bone Disease Patient Network NBHA National Bone Health Alliance |
The MHE Research Foundation is proud to be an affiliate of the Society For Glycobiology
