People with MHE / MO / HME need all the support they can get during times they require surgery and with their recovery. Care
Bridge is where you can keep loved ones informed during difficult times and they can post get well wishes to you or your child.
Get well wishes can lift you and or your child's spirits during these difficult times. This is also a great activity that your child can
help you with before their surgery takes place. Or put up a page for your child and surprise them during their recovery with all
the get well wishes. Ask your child's grandparents, friends and relatives to post a message to your child every day, this gives
your child something to look forward to during their recovery.
http://caringbridge.org/
Bridge is where you can keep loved ones informed during difficult times and they can post get well wishes to you or your child.
Get well wishes can lift you and or your child's spirits during these difficult times. This is also a great activity that your child can
help you with before their surgery takes place. Or put up a page for your child and surprise them during their recovery with all
the get well wishes. Ask your child's grandparents, friends and relatives to post a message to your child every day, this gives
your child something to look forward to during their recovery.
http://caringbridge.org/
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| Please register your contact information with the MHE Research Foundation. |
This online registration form has been encrypted with the following, SSL 3.0.RC4 with 128 bit encryption (High);
RSA with 1024 bit exchange (Internet Security). Once you have registered, you can come back anytime to modify
your profile. When you register you will choose a password to log in.
Please be aware that if you would like to participate in any research project that our foundation is an active part in you will still
need to fill out the online Research "PATIENT" Registry Form, as this is required by Human Subjects Regulations for Research.
The research participation process has not changed, if you have registered in this registry you DO NOT have to register again.
RSA with 1024 bit exchange (Internet Security). Once you have registered, you can come back anytime to modify
your profile. When you register you will choose a password to log in.
Please be aware that if you would like to participate in any research project that our foundation is an active part in you will still
need to fill out the online Research "PATIENT" Registry Form, as this is required by Human Subjects Regulations for Research.
The research participation process has not changed, if you have registered in this registry you DO NOT have to register again.
| The Connection Corner Family Support |
You do not need to feel alone, you can share your experiences with others. Please consider joining our group.
To view this group Click Here
Help the MHE Research Foundation Connection Corner expand this section of our website by sharing your families story. We hope to have this
section expanded starting June 1, 2010
Please email us your story and pictures to FamilyStories@MHEResearchFoundation.org
section expanded starting June 1, 2010
Please email us your story and pictures to FamilyStories@MHEResearchFoundation.org
The MHE Research Foundation would like to acknowledge KIDS ZONE is brought to you by the
Arnold Palmer Hospital for Children located in Orlando Florida
Arnold Palmer Hospital for Children located in Orlando Florida
You can now facebook with the MHE Research Foundations and the Foundations Vice President
Sarah Ziegler and Marjorie (Max) Reynolds. Click the Facebook logos
Sarah Ziegler and Marjorie (Max) Reynolds. Click the Facebook logos
| The MHE Research Foundation We are pleased to welcome Marjorie (Max) Reynolds as the new Patient/Family Care Coordinator. |
If you are in the need of obtaining an Orthopaedic Surgeon and family support, please feel free to contact Max at anytime at
maxreynoldsmhe@gmail.com or call 971-274-5935. As part of Max new role within the Foundation she is Director of the MHE / MO / HME
Google support group and Facebook etc and is assistant to Vice President Sarah Ziegler as Coordinator Clinical and Research Information.
maxreynoldsmhe@gmail.com or call 971-274-5935. As part of Max new role within the Foundation she is Director of the MHE / MO / HME
Google support group and Facebook etc and is assistant to Vice President Sarah Ziegler as Coordinator Clinical and Research Information.
Written consent must be obtained to attach web pages or the files attached to this website, please email the webmaster. Email the webmaster: webmaster@mheresearchfoundation.org Materials on this website are protected by copyright Copyright © 2014 The MHE Research Foundation Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care. The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine. This web page was updated last on 3/16/14, 12:0O pm Eastern time |
The MHE Research Foundation, we comply with the HONcode standard for health trust worthy information: By the Health On the Net Foundation.
Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
| This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation. All online submission forms use (SSL AES 256 bit encryption (High); RSA 1024 bit exchange) Protocol with Privacy protection. Our goal is to make this website as safe and user friendly as possible. |
| The MHE Research Foundation is a participating member organization of the United States Bone and Joint Decade/Initiative, (USBJD/I) & the USBJD/I Rare Bone Disease Patient Network |
The MHE Research Foundation is proud to be an affiliate of the Society For Glycobiology
