The MHE Research Foundation researched many options when it came to choosing an online support
group. Our foundation feels Google Groups has the most safe guards for your protection and the
most options within the group for the best service of its members.
You are required to sign into this group to post.
Click the join this group link, you will be asked to sign into your Google account, if you
have a Google email address you may join by entering your Google account. If you do not
have a Google account you will be asked to create one. You do not have to use a Google
email address to join this group. If you would like a gmail account please click this link
To post you have a few choices simply scroll down to where you see post send an email to this
group and click the link or add this email address MHE-MO-HME@googlegroups.com into your
existing address book.
If you would like to reply, reply to author, forward or up load a file you will need to sign in using the
sign in link.
Please be mindful that we are trying to provide the most protection and at the same time the most
options to sever you the best. We are aware that other online support groups maybe set up
differently, so it may take just a little time to get used to the set up in Google Groups.
FYI posts are grouped by subject line (Discussions) for easy use, so please include a subject line in
your post.
You also have a choices in the way you view this group, scroll down and you will see an orange tab
XML, if you click this link you will see both atom 1.0 & RSS 2.0 links you can view 15-50 messages
at a time or topics. You will also be able to read by date, title and author. You have the option of
choosing the best way to view this group that fits your needs. If you are looking for certain piece of
information contained within this Google group you can always use the search this group. You may
also create a page of your own and up load files once you sign in. MHERF hopes you find this group
both helpful and supportive.
If you require any assistance please feel free to call or email
The MHE Research Foundation has a Toll Free Phone: 1- 877- 486- 1758 or Email
Sarah Ziegler
National Director of Research and Coordinator of Clinical Information
Email: Sarahziegler@mheresearchfoundation.org
We also realize that an online support groups are not for everyone. Please consider filling
out the contact information form as well. We would like to stay in touch with you.
For faster downloading of this webpage we have not inserted the drop down tool bar
menu so please click the homepage link or sitemap to return to the other sections of the
MHERF website.
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Home page
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Site Map
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Wings of HOPE as we REACH of the Cure to Multiple Hereditary Exostoses
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This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation.
Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice
of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine.
Written consent must be obtained to attach web pages or the files attached to this website. Please email webmaster.
This web page was updated last on 2/20/08, 4:00 pm Eastern time
The MHE Research Foundation is proud to be working with the EuroBoNeT consortium, a European Commission
granted Network of Excellence for studying the pathology and genetics of bone tumors.
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