|Fifth International MHE Research Conference
Will be held in West Palm Beach @ the Paley Advanced Lengthening Institute
on the grounds of St. Mary's Medical Center
Friday May 20 - Sunday, May 22, 2016
Friday May 20, and Saturday May 21, 2016 the scientific sessions will be held.
Sunday May 22, 2016
MHE Patient / Family session orthopaedic presentations will cover the treatments of the forearms,
humerus, hips, femur, knees, tibia/fibula, ankles, limb lengthening and bone deformity corrections as
will as a comprehensive overviews of the scientific sessions. In the afternoon an MHE clinic will be held.
Closer to the conference an attendance form will be posted on the website with a check off box if you
would like to be seen during the MHE clinic with a request for the most current x-rays you have be sent
beforehand so they can be uploaded into the Paley Institute radiology system to save time. We will also
have on site child care for families. Also a discounted hotel list will be posted.
Also keep in mind there are lots of things for families to enjoy in West Palm Beach and Disney World is
only a 2 hour drive to West Palm Beach so you may want extent you stay
Conference organized by
Jeffrey D. Esko, Ph.D.
Professor, Department of Cellular and Molecular Medicine, Co-Director, Glycobiology Research & Training Center University of California, San Diego,
School of Medicine
Dror Paley, MD, FRCSC
Director of the Paley Advanced Limb Lengthening Institute and President Elect of the International Limb Lengthening and Reconstruction Society
Vice President and National Director of Research MHE Research Foundation
This conference is sponsored by
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|The MHE Research Foundation is a participating member organization of the
United States Bone and Joint Decade/Initiative, (USBJD/I) & the USBJD/I Rare Bone Disease Patient Network
|Dr. Dror Paley's presentation
Disclaimer, some of the sides contain operative pictures, also due to
technical issues some of the x-rays located in this presentation are
dark unfortunately were unable to fix this
|Dr. Kevin Jones introduction and Dr. John Dormans
|Maurizio Pacifici, PhD
Welcome remarks to the 2012 MHE Research Conference
|Sarah Ziegler opening remarks
|Craig Eaton opening remarks
|Fourth International MHE Research Conference
was held Friday Nov. 1 - Sunday, Nov. 4, 2012
Maurizio Pacifici, Ph.D.
Director of Orthopaedic of the Translational Research Program in Pediatric Orthopaedics at The Children's Hospital of Philadelphia, Professor of Orthopaedic
Surgery, University of Pennsylvania School of Medicine, Penn Center for Musculoskeletal Disorders
Click this link to download the PDF abstract book from this conference
Multiple hereditary exostoses (MHE): elucidating the pathogenesis of a rare skeletal disorder through
Jones KB1, Pacifici M, Hilton MJ. Connect Tissue Res. 2014
To read this full text publication click here
Dev Dyn. 2013 Jul 2. doi: 10.1002/dvdy.24010
Heparan sulfate in skeletal development, growth, and pathology: The case of hereditary
Huegel J, Sgariglia F, Enomoto-Iwamoto M, Koyama E, Dormans JP, Pacifici M.
Translational Research Program in Pediatric Orthopaedics, Division of Orthopaedic Surgery, The Children's Hospital of Philadelphia,
|Wings of HOPE as we REACH
for the CURE to
Multiple Hereditary Exostoses Syndrome / Multiple