Sarah Ziegler
The MHE Research Foundation Vice President & National Director of Research
Executive Director, The MHE National Research Registry & Coordinator of Clinical Information
Liaison Officer, University of Antwerp, Department of Genetics, Belgium
Liaison Officer, Rizzoli Orthopaedic Institute, Genetics Unit, Bologna Italy
Co-organizer Forth International MHE Research Conference
USBJD Rare Bone Disease Patient Network member
Email: SarahZiegler@MHEResearchFoundation.org
We will be posting the foundation phone number by April 9, 2011
Long Curriculum Vitae PDF
Short Curriculum Vitae summary
As National Director of Research, I facilitate interactions between scientists of different research disciplines. This has resulted in
basic researchers coming into the field and a better overall further understanding of the etiology of Multiple Hereditary
Exostoses/Mutiple Osteochondroma and the future promise of the discovery of a cure. As a result of these and other efforts the
Foundation has been a driving force in developing a growing network of MHE researchers and clinicians. Our foundation
established working partnerships many major Universities & Societies around the world.
A few examples:
As the Foundation’s Conference Organizer, I have co-organized three International MHE Research Conferences and the Forth
will be held Nov 3, - Nov 6, 2011.
Clinical conferences sessions during the International Pediatric Orthopaedic Symposium presented by POSNA and AAOS.
Pediatric Orthopaedic Society of North America (POSNA) May 3-7, 2010 an educational exhibit with a associated conference
posted.
As Executive Director of the National MHE Research Registry, under the auspices of the Registry, I sever as Liaison Officer to
the University of Antwerp, under Wim Wuyts, Ph.D. and the Rizzoli Orthopaedic Institute, Bologna, Italy under Luca Sangiorgi, M.
D., Ph.D., I assist these laboratories and other researchers within EuroBoNet in obtaining the Human subjects approvals
required with U.S. Hospitals for the collection of samples of exostoses, and other reagents sent to EuroBoNet researchers,
these are currently being studied in several laboratories and have resulted in a number of Journal publications. I also work
directly with United Sates Orthopaedic physicians in preparation of Orthopeadic clinical researcher studies.
Coordinator of Clinical Information, I work directly with Orthopaedic physicians around the world in the development of the clinic
information MHE Patients require.
2009 United States Bone and Joint Global Network Conference, U.S. Delegate.
If you are a research/medical professional with an interest in collaborating with one of the professionals located on this website
and or are interested in the Foundations research initiatives please complete Click Here
The MHE Research Foundation Vice President & National Director of Research
Executive Director, The MHE National Research Registry & Coordinator of Clinical Information
Liaison Officer, University of Antwerp, Department of Genetics, Belgium
Liaison Officer, Rizzoli Orthopaedic Institute, Genetics Unit, Bologna Italy
Co-organizer Forth International MHE Research Conference
USBJD Rare Bone Disease Patient Network member
Email: SarahZiegler@MHEResearchFoundation.org
We will be posting the foundation phone number by April 9, 2011
Long Curriculum Vitae PDF
Short Curriculum Vitae summary
As National Director of Research, I facilitate interactions between scientists of different research disciplines. This has resulted in
basic researchers coming into the field and a better overall further understanding of the etiology of Multiple Hereditary
Exostoses/Mutiple Osteochondroma and the future promise of the discovery of a cure. As a result of these and other efforts the
Foundation has been a driving force in developing a growing network of MHE researchers and clinicians. Our foundation
established working partnerships many major Universities & Societies around the world.
A few examples:
- Yu Yamaguchi, M.D., Ph.D., Professor, Sanford Children's Health Research Center, Burnham Institute for Medical Research,
La Jolla, CA - Maurizio Pacifici, Ph.D., Director of Orthopaedic Research, Anthony F. and Gertrude M. De Palma Professor of Orthopaedic
Research, Thomas Jefferson University College of Medicine, Philadelphia, PA - Jeffrey D. Esko, Ph.D., Professor, Dept. of Cellular Molecular Medicine, Co-Director, Glycobiology Research & Training
Center, UCSD, San Diego CA - Henry H. Roehl, Ph.D., Professor Dept of Biomedical Science, MRC Centre for Developmental and Biomedical Genetics, The
University of Sheffield, UK - John P. Dormans, M.D., Chief Orthopaedic Surgery The Children's Hospital of Philadelphia, Professor of Orthopaedic
Surgery University of Pennsylvania School of Medicine - Dror Paley, M.D., Director of the Paley Advanced Limb Lengthening Institute, St Mary's Hospital, West Palm Beach, FL
As the Foundation’s Conference Organizer, I have co-organized three International MHE Research Conferences and the Forth
will be held Nov 3, - Nov 6, 2011.
Clinical conferences sessions during the International Pediatric Orthopaedic Symposium presented by POSNA and AAOS.
Pediatric Orthopaedic Society of North America (POSNA) May 3-7, 2010 an educational exhibit with a associated conference
posted.
As Executive Director of the National MHE Research Registry, under the auspices of the Registry, I sever as Liaison Officer to
the University of Antwerp, under Wim Wuyts, Ph.D. and the Rizzoli Orthopaedic Institute, Bologna, Italy under Luca Sangiorgi, M.
D., Ph.D., I assist these laboratories and other researchers within EuroBoNet in obtaining the Human subjects approvals
required with U.S. Hospitals for the collection of samples of exostoses, and other reagents sent to EuroBoNet researchers,
these are currently being studied in several laboratories and have resulted in a number of Journal publications. I also work
directly with United Sates Orthopaedic physicians in preparation of Orthopeadic clinical researcher studies.
Coordinator of Clinical Information, I work directly with Orthopaedic physicians around the world in the development of the clinic
information MHE Patients require.
2009 United States Bone and Joint Global Network Conference, U.S. Delegate.
If you are a research/medical professional with an interest in collaborating with one of the professionals located on this website
and or are interested in the Foundations research initiatives please complete Click Here
| Sarah Ziegler |
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The MHE Research Foundation, we comply with the HONcode standard for health trust worthy information: By the Health On the Net Foundation. Click
here to verify.# HON Conduct 282463 and is linked on the NIH National Library of Medicine, Directory of Health Organizations (SIS) website, as well as
the link for Patient Information on The Diseases Database a cross-referenced index of human disease, and the Intute: health & life sciences a free
online service providing access to the very best Web resources for education and research located in the UK
here to verify.# HON Conduct 282463 and is linked on the NIH National Library of Medicine, Directory of Health Organizations (SIS) website, as well as
the link for Patient Information on The Diseases Database a cross-referenced index of human disease, and the Intute: health & life sciences a free
online service providing access to the very best Web resources for education and research located in the UK
The MHE Research Foundation is proud to be working with the EuroBoNeT consortium, a European Commission granted Network of Excellence for
studying the pathology and genetics of bone tumors.
studying the pathology and genetics of bone tumors.
| This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation. All online submission forms use (SSL 3.0, RC4 with 128 bit encryption (High); RSA with 1024 bit exchange) Protocol with Privacy protection. Our goal is to make this website as safe and user friendly as possible. |
| The MHE Research Foundation is a participating member organization of the United States Bone and Joint Decade, (USBJD) & the USBJD Rare Bone Disease Patient Network |
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| This web page was updated last on 10/06/09, 4:0O pm Eastern time |
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Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care.
The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine. In all cases we
recommend that you consult your own physician regarding any course of treatment or medicine.
The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine. In all cases we
recommend that you consult your own physician regarding any course of treatment or medicine.
The MHE Research Foundation is proud to be an affiliate of the Society For Glycobiology
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| Photo's taken during the Third International MHE Research Conference |
