| |||||||||||||||||||||
Welcome ! to the MHE Research Foundation website The MHE Research Foundation is a nonprofit 501(c)(3) organization dedicated to the support of, Researchers, Physicians and Families, Dealing with (MHE) Multiple Hereditary Exostoses Syndrome/(MO) Multiple Osteochondroma Syndrome a Rare Genetic Bone Disease. The MHE Research Foundations five point mission is to REACH, advance & support the following. |

| |||||||||||||||||||
| RESEARCH, to assist and support researchers in order to one day discover a treatment/cure for MHE/MO/HME. Our foundation works hand in hand with researchers from around the world in this mission. EDUCATION, to provide vital clinical informational guides benefiting both families and physicians. ADVOCACY, bring awareness about this rare neglected bone disease throughout the world. CLINICAL, to help provide resources to families enabling them to locate the medical care they require. HOPE, the research being conducted on MHE/MO/HME & the informational resources will bring a better quality of life to the families affected by this syndrome around the world. Scroll down to read highlights, use the tool bar section tabs above to view complete website information. |
| General donations to our foundation can be made Monthly,Quarterly,Annually as well as one time donation |
| Make A Donation Via Check |

| The AWARENESS ribbon color for MHE/ MO /HME is WHITE. Please show your support for our cause by wearing a white ribbon this way when people ask! You can let them know what our ribbon means. |
| CONNECTION CORNER MHE FAMILY SUPPORT SECTION VIEW CLICK HERE |
Written consent must be obtained to attach web pages or the files attached to this website, please email the webmaster. Email the webmaster: webmaster@mheresearchfoundation.org Materials on this website are protected by copyright Copyright © 2014 The MHE Research Foundation Disclaimer: While many find the information useful, it is in no way a substitute for professional medical care. The information provided here is for educational and informational purposes only. This website does not engage in the practice of medicine. In all cases we recommend that you consult your own physician regarding any course of treatment or medicine. This web page was updated last on 3/16/14 12:0O pm Eastern time |
| This website is regularly reviewed by members of the Scientific and Medical Advisory Board of the MHE Research Foundation. All online submission forms use (SSL AES 256 bit encryption (High); RSA 1024 bit exchange) Protocol with Privacy protection. Our goal is to make this website as safe and user friendly as possible. |


| The MHE Research Foundation is a participating member organization of the United States Bone and Joint Decade/Initiative, (USBJD/I) , USBJD/I Rare Bone Disease Patient Network , NBHA National Bone Health Alliance |
| What is Multiple Hereditary Exostoses Syndrome? Multiple Hereditary Exostoses (MHE) also often referred to as Hereditary Multiple Exostoses (HME) Multiple Osteochondromas (MO) is the preferred term used by the World Health Organization "WHO". |
| Research "PATIENT" Registry Click Here ** MHE / MO / HME Research Project is OPEN and needs patient participation.** Click Here |
| RESEARCH & THE SANFORD-BURNHAM |

| Journal "The Scientist" Bones to Brains - Autism- Relevant Behavioral Phenotype Click here to read this article PRESS RELEASE RESEARCH & THE SANFORD BURNHAM |
| The MHE Research Foundation Partnering in Advocacy and Education with the Musculoskeletal Tumor Society (MSTS) |
| Dr. Richard Lackman 2011 President of MSTS and long time supporter. Dr. Lackman is Porfessor and Director, Sarcoma Center of Excellence at the Abramson Cancer Center of the University of Pennsylvania |
| Dr. Lor Randal 2011 President of CTOS with Sarah Ziegler and Dr. Kevin Jones.Both are members of the Foundations advisory board. |
| Dr. Kevin B. Jones has authored the book "What Doctors Cannot Tell You: Clarity, Confidence and Uncertainty in Medicine" published June of 2012 Dr. Jones serves on the Scientific and Medical Advisory Board of our Foundation. We would like to thank Dr. Jones for all of his efforts on behalf of patients. |
| MHE Research was presented by Maurizio Pacifici, Ph.D., Director of Research, Division of Orthopaedic Surgery, The Children’s Hospital of Philadelphia and Sarah Ziegler in panel discussion. To view all video presentations from the 2013 Click Here To view the 2012 Symposium with Dr. Yu Yamaguchi's video presentation and all the others during this symposium Click Here |


| Opening remarks from Sarah Ziegler Foundation Vice President during the 2012 MHE Research Conference |
| Opening remarks from Craig Eaton Foundation President during the 2012 MHE Research Conference |
| The MHE Research Foundation Marjorie (Max) Reynolds Patient/Family Care Coordinator. |
| Dr. George H. Thompson, POSNA 2003 President, POSNA 2011 President, Dr. James Roach, POSNA 2010 President, John P. Dormans and Sarah Ziegler |
| Dr. Charles T. Price, Distinguished Achievement Award and POSNA 2005 President Sarah Ziegler |
| Dr. James Roach POSNA 2011 President, Sarah Ziegler |
| Dr. Leon Root Dr. John P. Dormans Dr. Richard Davidson Dr. James McCarthy LLRS 2012 Dr. James Roach, Dr. Harold JP van Bosse |











| Dr. Benjamin A. Alman |

| Our Foundation would like to thank EPOS 2014 and participants especially Luca Sangiorgi, MD. Ph.D who is a foundation member of our Scientific and Medical Board Our Foundations Vice President and National Director of Research Sarah Ziegler held an educational display at the European Peadiatric Orthopaedic Society annual congress April 17-20, 2013 in Athens Greece. This meeting attracts Pediatric Orthopaedic surgeons from over 32 countries. During this conference. Dr. Dror Paley presented "Treatment of the Hip in Multiple Hereditary Exostoses (MHE) by Safe Surgical Dislocation " |


| The 10 Annual International Pediatric Orthopaedic Symposium (IPOS) was held December 4-7 2013 presented by POSNA and AAOS and Dr. Dror Paley presented Treating MHE of the Proximal Femur and Dr. Pater Waters presented MHE and the forearm The 11 Annual International Pediatric Orthopaedic Symposium (IPOS) will be held Dec 3 - Dec 6, 2014 Our Foundations Vice President and National Director of Research Sarah Ziegler always will attend and have an educational display The MHE Research Foundation would like to express its gratitude to POSNA, AAOS, the leadership of these Societies on behalf our foundation for their support in the improvement of the clinical care MHE patients receive through all of the continuing educational efforts. As |
| Mechanistic and Therapeutic Insights into Skeletal Biology Learned from the Study of Rare Bone Diseases Thursday, September 11th, 2014 One day prior to the American Society for Bone and Mineral Research (ASBMR) 2014 Annual Meeting) George R. Brown Convention Center, 1001 Avenida De Las Americas, Houston, TX |






| The 4th International MHE Research Conference was held Nov 1- 4, 2012 to review the videos and download the conference abstract book Click Here and also Feb 2014 conference report Published in the Journal of Connective Tissue Research |
| Was held SUNDAY, SEPTEMBER 22, 2013 at El Caribe Country Club 2013 MHE Research Foundation "The Humanitarian Scientific Achievement Award" Presented to Dror Paley, MD, FRCSC Director Paley Advanced Limb Lengthening Institute Click Here to read more |
