Pure White Wings All children are born as pure as small white doves with spirits eager to soar. With nurture and care, over time they spread their wings as they grow. With the warm summer breeze, parents take great joy in watching our kids learn to fly. Flying around the clear blue sky with endless amounts of energy. Darting gracefully between cotton cloud dreams as these little doves fly after one another while playing and chasing their dreams. You see our pure white doves were born with the same eager spirit, but also with BROKEN WINGS. Wings that are lame, bumpy and crooked, this hampers their ability to fly. Many times they simply watch through a window as others fly to follow their dreams. They can only imagine the feeling of boundless energies of freedom. Imagining what it would be like to dart at will between cotton cloud dreams, during the warm summer breeze. While their wings maybe broken, their SPIRITS SOAR, giving these kids the unmatched strength, courage and determination to overcome and wisdom far beyond their years. It is their SPIRIT! Gracing them to find other adventures in life and spotting joy that others over look or take for granted. Their energies are saved for times when it's needed for them to be able to overcome the challenges they face day in and day out. Their strength is used to endure the many surgeries and pain they face, trying to repair broken wings. Hoping that this surgery will be their last. The WINGS OF HOPE lead the way as we REACH for the CURE! In order to fix our children’s broken wings once and for all. To put an end to a life time of sitting on the side lines, watching others through the window. So they may also one day truly feel all the scenes of freedom others enjoy. WHO ARE THESE WINGS OF HOPE? YOU ASK !! THEY ARE EVERYONE OF US!!! For you see, we are the care takes of the future, so others may one day be able to fly amongst clear warm blue skies of cotton cloud dreams. Just the way life should be. The MHE / MO / HME RESEARCH being conducted today around the world, will open the WINDOW in the future and allow our children not only to FLY LIKE THE PURE WHITE DOVES THEY ARE, BUT SOAR LIKE EAGLES!!!! The MHE Research Foundation would like to THANK YOU for becoming one of our WINGS OF HOPE!!!! |
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The MHE Research Foundation, we comply with the HONcode standard for health trust worthy information: By the Health On the Net Foundation.
Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
Click here to verify.# HON Conduct 282463 and is the patient support link on the US Government Genetics Home Reference (http://ghr.nlm.nih.gov)
website, also linked for Patient Information on The Diseases Database a cross-referenced index of human disease, as well as the
Intute: health & life sciences a free online service providing access to the very best Web resources for education and research located in the UK
The MHE Research Foundation is proud to be working with the EuroBoNeT consortium, a European Commission granted Network of Excellence for
studying the pathology and genetics of bone tumors.
studying the pathology and genetics of bone tumors.
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| The MHE Research Foundation is a participating member organization of the United States Bone and Joint Decade, (USBJD) & the USBJD Rare Bone Disease Patient Network |
The MHE Research Foundation is proud to be an affiliate of the Society For Glycobiology
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Welcome ! to the MHE Research Foundation website The MHE Research Foundation is a nonprofit 501(c)(3) organization dedicated to the support of, Researchers, Physicians and Families, Dealing with (MHE) Multiple Hereditary Exostoses Syndrome/(MO) Multiple Osteochondroma Syndrome a Rare Genetic Bone Disease. The MHE Research Foundations five point mission is to REACH, advance & support the following. |
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| RESEARCH, to assist and support researchers in order to one day discover a treatment/cure for MHE/MO/HME. Our foundation works hand in hand with researchers from around the world in this mission. EDUCATION, to provide vital clinical informational guides benefiting both families and physicians. ADVOCACY, bring awareness about this rare neglected bone disease throughout the world. CLINICAL, to help provide resources to families enabling them to locate the medical care they require. HOPE, the research being conducted on MHE/MO/HME & the informational resources will bring a better quality of life to the families affected by this syndrome around the world. Scroll down to read highlights, use the tool bar section tabs above to view complete website information. |